The benefits and harms emerging from digital data are distributed inequitably, within and across society. Solidarity-based data governance (in short: data solidarity) seeks to change that. It seeks to facilitate and promote low-risk data uses that are likely to create significant benefits for people and communities, while calling for prohibitions of data use that are high-risk and at the same time unlikely to create benefits for individuals and communities. While the latter helps to prevent harm, data solidarity also calls for more effective ways of mitigating harm when and where it occurs. This talk will give an overview of the data solidarity approach and discuss how it can be applied to genomic data sharing.
